The full potential of precision health can only be realized when the effort goes beyond the lab and the clinic and engages patients and their communities in both health management strategies and research efforts. The behavioral, psychosocial and ethics scientific pillar enables the fulfillment of that potential through robust patient engagement and a focus on the ethical conduct of research and healthcare.
Center for Bioethics
The Center for Bioethics is a gathering place for discussion, education, research, and collaboration in bioethics and related fields. Based at IU School of Medicine, faculty from schools across IUPUI lead these efforts, guiding healthcare providers and researchers in their work and helping society confront important questions about health, science, and technology.
Optimizing communication, participant engagement, and the ethical conduct of precision
Drawing on the extensive experience of the Center for Bioethics and the Bioethics and Subject Advocacy Program (BSAP) of the Indiana Clinical and Translational Sciences Institute (CTSI), BSAP supports precision health by working with researchers to optimize communication, participant engagement, and the ethical conduct of research.
Encouraging behaviors to maximize patient involvement, prevention and treatment
Interdisciplinary investigators have a long history of developing interventions to promote health behavior change to prevent, detect, and manage illness which are highly individualized and provide personalized messages specifically designed to meet the unique needs of each user. The plan is to develop precision behavioral interventions that mimic the natural process of individualized consultation, but at significantly lower costs and with greater reach.
Maximizing the use of electronic health records, while protecting patient and research participant confidentiality
This team works with investigators and leadership to help explain precision health information to patients and obtain consent for its storage and use. Investigators also conduct research on how best to provide patients and research participants with opportunities to access and have input on the use of such data.